As a starting point  see www.nhs.uk – the new public gateway to NHS services with substantial information for patients on the performance of different local hospitals and disease-specific information.

There is a COPD Co-creating health pilot in Cambridge, supported by the Health Foundation. For further information on this and the thinking behind co-creation, please use this link here or go to the co-creating health pages of the Health Foundation to sign up for updates by clicking here.

Patient Reported Outcome Measures (PROMs)
For a full definition see our Jargon Buster page here

Also we recommend looking at the  work of the Picker Institute on user involvement here.